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20-48 Living and Working with Fibromyalgia

Sara’s View of Life with Sara Troy, on air from November 24th

I hear you body, you are in a spasm and have been for weeks now, and you are in constant pain. It is easy to get angry but that tenses you up and hurts even more. I have spent the last few days just resting, the pain has not gone away, but I can cope with it better. These are the joys of fibro, as in all life it is how we handle it. Rest, nurture, and feed your spirit and soul to heal, never 100% for that will never happen, but listening to the body makes things easier.

An open heart can feel pain, but sometimes it is the only way to know joy, the difference is not to hold that sorrow and pain in, or take it on, but to let it go through you and out into gratitude and joy of living. I know it can be hard when living in pain daily, but feed the gratitude and joy of life, the purpose, and meaningfulness, and the pain will not take hold of you.

As a podcaster and producer of a podcast network, I work daily to bring shows to people to help them on their journey in life. We all have struggles, and yes some are really hard to live with but gives me a reason to get up each day and do something meaningful, it feeds me joy and lessens the pain, for which never goes away, but lessens. Pain becomes your partner, and you learn to listen to it, and when it needs you to stop and rest you do, for if you don’t you will pay for it.

For me it is the fatigue I have to live with, the constant feeling of tiredness, never recharging, always in some sort of pain, always working through it, but that is what we have to do, work with our pain, our bodies and find a balance that helps us live with it daily.

I listen to music and that can rebalance me, I watch movies/TV and that redirects me, I go for walks in nature and that feeds me, I see what I have and live in gratitude of it, and I don’t feed the mistakes of disappointments, but the successes and accomplishments. I find joy in all I do, I love what I do, I love the love it gives and the joy it brings and the answers needed by those on their own journey in life.

I find meaning in life, I find purpose, and that stops me from dwelling in my pain, and allows me to get up every day inspite of it, but at the same time honouring my body and its needs.

I have done a few shows on this disease, and many have shared their ways of managing it in their lives.

What is Fibromyalgia?

Fibromyalgia (FM) was recognized as a true syndrome (now upgraded to a disease) by the American College of Rheumatology in 1990. FM is thought to exist in 2% to 3% of the population. It occurs in both men and women and women are affected 6 to 9 times more often than men. In women, FMoccurs most commonly between the ages of 30 to 60. FM can also affect teenagers, children, and the elderly. FM has no known cause. Current research into how the nervous system deals with pain has shown that various abnormalities are present in people who have FM.

Other studies have indicated that genetic (inherited) factors may predispose some individuals to develop FM. These genetic factors can affect how the body responds to pain, physical or emotional trauma, and illnesses (such as viral infections).

This work is at the research stage and not yet available for doctors to help diagnose patients with FM in their offices. But this knowledge can be helpful in the management of FM.

DR Ric Arseneau world-renowned specialist on Fibromyalgia

Sara Shares her journey living with Fibro and Myofascial pain.

Debra Morga shares her skill in living with Fibromyalgia

Leisa is a passionate and fierce advocator for invisible chronic illness and volunteers with the B.C. Lupus Society and Arthritis Research Canada to raise awareness for these complicated and debilitating diseases such as Systemic Lupus, Fibromyalgia and Osteoarthritis.


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